Meet Evan!

Evan was born July 15, 2005 at 32 weeks (eight weeks premature) at Swedish Hospital. Shortly after birth, he was diagnosed with CHARGE Syndrome.

Evan spent his first seven weeks of life in the Swedish NICU before being transferred to Children's Hospital. They thought Evan most likely needed a trach, and Children's was the only place with pediatric ENTs. The Children's team was able to correctly diagnose the airway problem, and fortunately he did not require a trach. Instead, he had surgery for a Nissen fundoplication and g-tube for his severe reflux, and that made a tremendous difference.

Since his discharge in October 2005, Evan has returned to Children's for several planned surgeries and spent one week in the PICU due to a lung infection. He also is followed by numerous clinics.

Today Evan is a busy toddler who spends his days growing, learning, and getting into trouble. His family is incredibly grateful to Children's -- both for the excellent care Evan has received and for allowing them to be an active part of his health care team.

Children's has also been very generous with financial assistance to Evan's family by helping with medical expenses not covered by their insurance.